"Severe bowel problems are a social stigma. Many people tend to stay at home, too embarrassed to go out. Finding a working bowel routine is key to quality of life for these patients", Valentina Passananti, specialist in Clinical Medicine and Gastroenterology, says.Read More
"The most important thing is to precribe the right catheter to the right person – it's the match that matters", Diane Newman, urology nurse for over 30 years, says.
We were happy to get an interview with her at ICS.
"In pediatric care it's common to treat bladder and bowel together, in cross-functional teams, something the adult care could learn from", Dr Giovanni Mosiello, pediatric urologist, says when we meet with him at ICS in Florence.
The doctors attending to Hassan had not heard from him in a long time; with his extensive injuries and constant battling of infection, they feared the worse. But the most remarkable recovery had occurred. This is how it happened…Read More
"I thought prostate problems affected the oldies, not people like me, in their 40's. But when the weak flow, urgency and nightly visits to the toilet began, I began to wonder…" This is David's story.Read More
When a child suffers from bowel problems, it often affects the whole family. Many struggle for far too long with dietary and stool changing medication, without satisfactory results. But there are other solutions!
Bowel management is not an easy subject to talk about. Many children with bowel dysfunction and their families suffer in silence, often in desperate need for help. One of the nurses who goes above and beyond to support these families is award winning Christeen Smith from Edinburgh. Watch this interview to get to know her more!Read More
Bowel problems in children can occur for many different reasons. Some are related to a specific diagnosis, like Spina Bifida or Anorectal Malformation. Some are more diffuse and differ over time, like constipation or tummy cramps. We tried to map some of the concepts for you!Read More
Paul and his son Tim, who is now 16 years old, were early adopters of TAI, so much so that they almost invented the therapy themselves…Read More
Joel’s older brother was driving the car, packed with siblings, returning from a sunny day at the lake when the accident happened. At the age of 9 Joel suffered a spinal cord injury, but it didn’t stop him from making his way to the dance floor.
Photo by Hugo GlendinningRead More
If you ask the European Association of Urology Nurses (EAUN) they would say: Guidelines. We took the opportunity to talk to Susanne Vahr, Clinical Nurse Specialist at University Hospital of Copenhagen, but also a board member of EAUN, responsible for the EAUN guidelines.Read More
There are 10 000 people with a racing license in the UK. 200 of them are women, and one of them has a spinal cord injury. Her name is Nathalie McGloin and today she is at the ACCT symposium in Sweden to share her inspiring story. For you who will miss it – here is a teaser!Read More
Heads or tails? It's the same coin, and when treating neurogenic bladder and bowel, it's the patient that is the unifying focus.Read More
Many people think that an enlarged prostate (BPH) and prostate cancer are associated, but the simple answer is: No, they are not.
Professor Ralph Peeker explains the concepts.Read More
One of the biggest issues with transanal irrigation (TAI) is that many users quit too early – before the therapy had a chance to be effective.
We asked two experts to share their views on this topic – this is the summary of their talks.
It can be difficult to find a regular toilet routine if you suffer from chronic constipation or fecal incontinence. Some people are constantly afraid of public accidents or literary spending hours in the bathroom.
Mikey was one of them until he found the solution to his bowel problems – transanal irrigation (TAI). This blog post will give you an insight!
This weekend, join men and women across the globe in the 2016 Distinguished Gentleman’s Ride to find a cure for Prostate Cancer and to help Men’s Mental Health.Read More
Our user panel TellUs gives us a lot of useful information. For example that 82% of the people with Spinal Cord Injury have problems with their bowel. But there is still a stigma attached. Only 29% of the panel members were asked about their bowel by a healthcare professional, while 68% wanted to be asked... Sometimes the knowledge is poor, and sometimes it's just hard to get over the embarrassment.
Our guest blogger Kent Revedal has a clear stand on this matter - this is his direct plea to the healthcare professionals out there!Read More
Suffering a Spinal Cord Injury is a devastating and life-altering event for anyone, but in developing countries with limited healthcare systems, it’s even more fatal. We talked to Mandira Baniya, Nursing Supervisor at the Spinal Injury Rehabilitation Center in Nepal.
Mandira has performed a unique study on intermittent catheterization in Nepal. Among other remarkable findings, her study states that 96% of the participants reuse their disposable catheters, and that 73% don’t have accessible toilets.
Find out more about Mandira Baniya and her study in this blog post!Read More