Born in Southern Sudan, injured in Egypt and living in Norway, I have experienced many kinds of medical care. This is my journey to a working bladder routine after suffering a spinal cord injury.Read More
If you ask the European Association of Urology Nurses (EAUN) they would say: Guidelines. We took the opportunity to talk to Susanne Vahr, Clinical Nurse Specialist at University Hospital of Copenhagen, but also a board member of EAUN, responsible for the EAUN guidelines.Read More
Having suffered a SCI at age 16, Kissinger Deng knows the pitfalls involved in flying as a wheel chair user. A Paralympian, he flies often as the goal keeper for the Oslo Sledge Hockey team. Here he shares his tips for a hassle-free travel experience.Read More
"Don't make sex so difficult". Dorthe Forsell is a sex therapist at the Neurology Department at Sahlgrenska University Hospital. In the second and final part of the interview, she wishes that more people could take a more relaxed and playful approach to sex.Read More
After an injury or illness that reduces physical capabilities, your sex life may face new challenges. It takes time to adapt to your changed body. But the sex drive is not lost – it's there, like for all other people.Read More
Suffering a Spinal Cord Injury is a devastating and life-altering event for anyone, but in developing countries with limited healthcare systems, it’s even more fatal. We talked to Mandira Baniya, Nursing Supervisor at the Spinal Injury Rehabilitation Center in Nepal.
Mandira has performed a unique study on intermittent catheterization in Nepal. Among other remarkable findings, her study states that 96% of the participants reuse their disposable catheters, and that 73% don’t have accessible toilets.
Find out more about Mandira Baniya and her study in this blog post!Read More
Not only the athletes are making it to the Paralympics in Rio this year – there are also a whole team of nurses and other medical staff on site. We got hold of Bev Everton, a nurse with the British Paralympic team. Bev always keep a survival kit in her bag, but not the kind you think…Read More
She was injured in a car accident at the age of five – today she is 19 and a promising handball player, living her life to the fullest. But it wasn’t always easy to be a child with a spinal cord injury.
This is Julia Johansson’s inspiring story.Read More
It’s an early December day and I have just boarded an aircraft between Stockholm and Frankfurt. It’s a two hour flight. Short and smooth. No risk of needing to use the toilet during the flight.
It turns out the flight is delayed since we do not leave the gate at the planned time. 15 minutes later the captain announces that due to snowstorms in Europe we have been scheduled for a slot much later. At the moment we may not be able to leave Stockholm for another 3.5 hours.
That’s when I realize I have forgotten to bring my urinary bag onboard. I feel the panic growing inside of me as I know that during these short flights there is no aisle chair that can transport me to the toilet...Read More
In a perfect world, urinary catheters would be environmentally friendly enough to flush down the toilet, but not yet achievable. But there are ways to reduce the environmental footprint of catheters!
The year is 1983, and Stefan has just finished the Swedish military service. On a whim, he applies for fighter pilot training. A few tense weeks later, he and eleven other young men are notified that they have been accepted—he is overjoyed!
Some years later the first symtoms began to emerge and eventually he was diagnosed with MS (Multiple Sclerosis). This is the story about Stefan Granholm, still fighting battles, but of a totally other kind.
Photo: Maria Granlund
Most of us take the healthy functioning of our bladder for granted, but impairment of bladder function can be a deeply troubling cause of daily anxiety if you have a Neurogenic Bladder.
In this post, we shall look at the symptoms and available treatments for managing the Neurogenic Bladder.Read More
Water is the only drink for a wise man, Henry David Thoreau said... and we agree!
Water supports kidney and bladder functions, helps prevent constipation, and makes it easier to maintain your weight as water reduces cravings for other more calorie-dense drinks. Water also helps those with tetraplegia to manage low blood pressure issues.
So let’s dive into the essentials!Read More
It´s February 1992 and on the PA system I hear ”Bob en piste”. I am in Albertville, France, during the olympics and for some obscure reason I ended up watching the 4-man bob-sleigh. We shall not go into detail about that story for the sake of you readers...
However, something became very clear to me when I saw these olympic athletes competing. The first thing they measured was the starting time, basically how fast they were able to run to a certain point and then get into the Bob. The top teams always had the best start times. Those who were way behind these first few seconds had no chance to win any medals. The race was not won during the first few seconds but a good start was important to stand a chance during the rest of the race.Read More
This time we will do some trend spotting, and what could be better than discussing the future with someone who made history, revolutionizing catheterization with the hydrophilic catheter – Jan Utas.Read More
Millions of people around the world have some kind of disability. In many cases it is impossible to tell, just by looking at someone.
These invisible impairments are limiting in one way or another, even though it is not obvious to others.
So let’s focus beyond the visible!
Did you know that 8 out of 10 people living with Multiple Sclerosis (MS) experience bladder problems? And that the risk of developing MS is significantly higher for women than for men?
So, with the International Women’s Day in mind, we will put extra focus on MS and the bladder today!Read More
When you see someone in a wheelchair, you notice the obvious – this person can’t walk. But that’s just one issue, and not even the highest ranking that most people with Spinal Cord Injury (SCI) must negotiate.
Very often bladder and bowel problems are ranked as bigger obstacles than the ability to walk.
Learn more about the connection between SCI and the bladder in this blog post.
It might seem like a jungle out there, but let us help you point out the most important things to think about, when choosing the right catheter.
After a while CIC (Clean Intermittent Catheterization) becomes a part of your everyday life and emptying your bladder should therefore be as easy and comfortable as possible.
The catheter has to fit your needs, which means that there isn’t one specific type or model that is right for everyone. But there is some common, and important, advice.Read More
It could be said in one sentence: The most important for your health and well-being (within your own control) is regular exercise, good sleep, varied food, daily routines, pauses for rest and relaxation, socializing with people you like and moderate alcohol intake. And still it can be so hard to live by…
This advice goes for everyone, regardless if you have a disability or not. But with a physical disability your lifestyle is even more important.
That’s why we asked the Spinalis foundation, the true experts on living with a Spinal Cord Injury, for guidance!Read More