Taking charge of your life, Part 2

Posted by Anna Westberg, December 2 2016

There are always positives to be found among the downsides. If the disease or diagnosis, and the various associated matters weigh heavily, it helps to look for all the positive things in life that weigh against this. To achieve that balance, a caregiver needs to be prepared to talk, ask questions and not serve answers like an automaton.

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Topics: Coping strategies

Taking charge of your life, Part 1

Posted by Anna Westberg, November 24 2016

What do you do when faced with the hard facts? How do you go on after a life-changing diagnosis that you will live with 24 hours a day, maybe for the rest of your life? There may be no cure, but there could be relief – and ways to gain new perspectives.

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Topics: Coping strategies

What's the difference between Enlarged Prostate (BPH) and Prostate Cancer?

Posted by Helene Klasson, November 18 2016

Many people think that an enlarged prostate (BPH) and prostate cancer are associated, but the simple answer is: No, they are not.

Professor Ralph Peeker explains the concepts.



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Topics: BPH

Love, intimacy and regaining confidence post illness or injury

Posted by Kent Revedal, November 10 2016

When you have a life changing experience such as an accident, or you get a diagnosis, a lot of things can change in your life. It is during times like these that we realize that no man is an island. We surely need people in our life. Through my work with CercaDeTi Rehab, my colleague and I have identified three key areas to work on to avoid isolation, which I shall share with you in this post.

 

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Topics: intimacy

Sex after injury or illness – part 2

Posted by Anna Westberg, November 3 2016

"Don't make sex so difficult". Dorthe Forsell is a sex therapist at the Neurology Department at Sahlgrenska University Hospital. In the second and final part of the interview, she wishes that more people could take a more relaxed and playful approach to sex.

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Topics: CIC, TAI, MS, sci, Sexuality

Sex after injury or illness – part 1

Posted by Anna Westberg, October 27 2016

After an injury or illness that reduces physical capabilities, your sex life may face new challenges. It takes time to adapt to your changed body. But the sex drive is not lost – it's there, like for all other people.

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Topics: CIC, TAI, MS, sci, Sexuality

Kent Revedal: How I found the solution to my SCI related bowel problems

Posted by Paul Wilkinson, October 20 2016

One consequence of a broken spinal cord is loss of bladder and bowel control. 

Kent Revedal suffered a spinal cord injury in a motorcycle accident and he desperately searched for a bowel regime to avoid public 'accidents'. He found one! This is Kent's own story, in three films, about how that happened. 

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Topics: TAI, sci

6 tips and tricks for Transanal Irrigation (TAI) users

Posted by Kent Revedal, October 13 2016

”As easy as one, two, three...” Everywhere we hear or see commercials about technical things. We hear that it's so easy, almost intuitive. What many of us have learned – sometimes the hard way is that if it sounds too good to be true, it is too good to be true... Some things need to take time and practise.

 

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Topics: TAI, Transanal irrigation, sci

2 experts: How to increase compliance in transanal irrigation (TAI)

Posted by Helene Klasson, October 6 2016

One of the biggest issues with transanal irrigation (TAI) is that many users quit too early – before the therapy had a chance to be effective.

We asked three experts to share their views on this topic – this is the summary of their talks.

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Topics: TAI

What is Transanal Irrigation?

Posted by Helene Klasson, September 30 2016

It can be difficult to find a regular toilet routine if you suffer from chronic constipation or fecal incontinence. Some people are constantly afraid of public accidents or literary spending hours in the bathroom. 

Mikey was one of them until he found the solution to his bowel problems – transanal irrigation (TAI). This blog post will give you an insight!

 

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Topics: Bowel therapy, bowel management, TAI

Join the 2016 Distinguished Gentlemans Ride

Posted by Helene Klasson, September 23 2016

This weekend, join men and women across the globe in the 2016 Distinguished Gentleman’s Ride to find a cure for Prostate Cancer and to help Men’s Mental Health.

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Topics: BPH, Enlarged Prostate

User perspective of TAI: Lack of knowledge among healthcare professionals is causing needless suffering

Posted by Helene Klasson, September 22 2016

Our user panel TellUs gives us a lot of useful information. For example that 82% of the people with Spinal Cord Injury have problems with their bowel. But there is still a stigma attached. Only 29% of the panel members were asked about their bowel by a healthcare professional, while 68% wanted to be asked... Sometimes the knowledge is poor, and sometimes it's just hard to get over the embarrassment.

Our guest blogger Kent Revedal has a clear stand on this matter - this is his direct plea to the healthcare professionals out there!

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Topics: Spinal cord injury, TAI, Transanal irrigation, sci

Improving SCI care in Nepal

Posted by Helene Klasson, September 15 2016

Suffering a Spinal Cord Injury is a devastating and life-altering event for anyone, but in developing countries with limited healthcare systems, it’s even more fatal. We talked to Mandira Baniya, Nursing Supervisor at the Spinal Injury Rehabilitation Center in Nepal.

Mandira has performed a unique study on intermittent catheterization in Nepal. Among other remarkable findings, her study states that 96% of the participants reuse their disposable catheters, and that 73% don’t have accessible toilets.

Find out more about Mandira Baniya and her study in this blog post!

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Topics: CIC, sci

How I became a Paralympic Archer

Posted by Helene Klasson, September 8 2016

Mikey became spinal cord injured during an assault course in the army. Today he's using a bow instead of a firearm, and made it to Paralympics in Rio!

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Topics: Spinal cord injury, sports

Being a Paralympic nurse

Posted by Helene Klasson, September 1 2016

Not only the athletes are making it to the Paralympics in Rio this year – there are also a whole team of nurses and other medical staff on site. We got hold of Bev Everton, a nurse with the British Paralympic team. Bev always keep a survival kit in her bag, but not the kind you think…

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Topics: CIC, travel, Bowel therapy, bowel management

Family life after a Spinal Cord Injury

Posted by Helene Klasson, August 24 2016

He was on his way to Spain to start a career as a professional basketball player when he met Sarah. Normally he was quite shy, but there was something special about Sarah that made him leave his comfort zone and not only ask her out on a date, but to come to Spain with him.

And here they are a few years later, living a family life back in Sweden. One thing’s for sure—there’s another level of challenges with small kids, when dad is in a wheelchair.

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Topics: Spinal cord injury

Sports was my rescue

Posted by Helene Klasson, August 18 2016

As a kid he was a promising soccer player. Growing up in the country, the soccer field was his whole world. But after an illness his life took a sudden turn. Today he is playing basketball and rugby – in a chair.

Read about Mikael who took his life back with help from his biggest passion – sports.

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Topics: Spinal cord injury, sports

Bitten by the travel bug 2

Posted by Anna Westberg, July 28 2016

Sebastian Forsén discovered the joy of traveling on a road trip in the USA a few years after he suffered his spinal cord injury.

Since then, Sebastian has crisscrossed the globe. Here Sebastian gives his best tips for those of you who are drawn to distant horizons.


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Topics: travel

Bitten by the travel bug 1

Posted by Anna Westberg, July 7 2016

Traveling most often involves discovering exciting new things - about yourself and the world around you. And not least, returning home, invigorated and stimulated.

For several years, Sebastian Forsén has run Welltrips, a travel agency that specializes in trips for people with some form of disability. Sebastian himself has a spinal cord injury, and has traveled extensively.

"You broaden your perspectives, when you travel," maintains Sebastian. "And you grow as a person when you see that you can handle more than you think."

Sebastian will give us his best travel tips in two blog posts!

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Topics: travel

Continence and incontinence

Posted by Sandra Abrahamsson, June 30 2016

 
 
 

The words "continence" and "incontinence" might cause some confusion. They are often used to explain the same thing, but they are actually each other's opposites.

Continue to read this blog post and find out the basics of continence and incontinence!

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Topics: continence, incontinence