Our user panel TellUs gives us a lot of useful information. For example that 82% of the people with Spinal Cord Injury have problems with their bowel. But there is still a stigma attached. Only 29% of the panel members were asked about their bowel by a healthcare professional, while 68% wanted to be asked... Sometimes the knowledge is poor, and sometimes it's just hard to get over the embarrassment.
Our guest blogger Kent Revedal has a clear stand on this matter - this is his direct plea to the healthcare professionals out there!
Suffering a Spinal Cord Injury is a devastating and life-altering event for anyone, but in developing countries with limited healthcare systems, it’s even more fatal. We talked to Mandira Baniya, Nursing Supervisor at the Spinal Injury Rehabilitation Center in Nepal.
Mandira has performed a unique study on intermittent catheterization in Nepal. Among other remarkable findings, her study states that 96% of the participants reuse their disposable catheters, and that 73% don’t have accessible toilets.
Find out more about Mandira Baniya and her study in this blog post!
Mikey became spinal cord injured during an assault course in the army. Today he's using a bow instead of a firearm, and made it to Paralympics in Rio!
Not only the athletes are making it to the Paralympics in Rio this year – there are also a whole team of nurses and other medical staff on site. We got hold of Bev Everton, a nurse with the British Paralympic team. Bev always keep a survival kit in her bag, but not the kind you think…
He was on his way to Spain to start a career as a professional basketball player when he met Sarah. Normally he was quite shy, but there was something special about Sarah that made him leave his comfort zone and not only ask her out on a date, but to come to Spain with him.
And here they are a few years later, living a family life back in Sweden. One thing’s for sure—there’s another level of challenges with small kids, when dad is in a wheelchair.
Topics: Spinal cord injury
As a kid he was a promising soccer player. Growing up in the country, the soccer field was his whole world. But after an illness his life took a sudden turn. Today he is playing basketball and rugby – in a chair.
Read about Mikael who took his life back with help from his biggest passion – sports.
Sebastian Forsén discovered the joy of traveling on a road trip in the USA a few years after he suffered his spinal cord injury.
Since then, Sebastian has crisscrossed the globe. Here Sebastian gives his best tips for those of you who are drawn to distant horizons.
Traveling most often involves discovering exciting new things - about yourself and the world around you. And not least, returning home, invigorated and stimulated.
For several years, Sebastian Forsén has run Welltrips, a travel agency that specializes in trips for people with some form of disability. Sebastian himself has a spinal cord injury, and has traveled extensively.
"You broaden your perspectives, when you travel," maintains Sebastian. "And you grow as a person when you see that you can handle more than you think."
Sebastian will give us his best travel tips in two blog posts!
The words "continence" and "incontinence" might cause some confusion. They are often used to explain the same thing, but they are actually each other's opposites.
Continue to read this blog post and find out the basics of continence and incontinence!
She was injured in a car accident at the age of five – today she is 19 and a promising handball player, living her life to the fullest. But it wasn’t always easy to be a child with a spinal cord injury. This is Julia Johansson’s inspiring story.
It’s an early December day and I have just boarded an aircraft between Stockholm and Frankfurt. It’s a two hour flight. Short and smooth. No risk of needing to use the toilet during the flight.
It turns out the flight is delayed since we do not leave the gate at the planned time. 15 minutes later the captain announces that due to snowstorms in Europe we have been scheduled for a slot much later. At the moment we may not be able to leave Stockholm for another 3.5 hours.
That’s when I realize I have forgotten to bring my urinary bag onboard. I feel the panic growing inside of me as I know that during these short flights there is no aisle chair that can transport me to the toilet...
– You can’t fly, right? But probably you don’t think about that much? I can’t walk and I don’t think about that much…
Taneli Tenhunen has had a spinal cord injury from birth, and reveals my own prejudice towards those who use a wheelchair. Taneli can’t fly either, but close enough. He made it to the Paralympics in Beijing and now he is planning his comeback in the tennis court. Next stop Tokyo, 2020!
In a perfect world, urinary catheters would be environmentally friendly enough to flush down the toilet, but not yet achievable. But there are ways to reduce the environmental footprint of catheters!
The year is 1983, and Stefan has just finished the Swedish military service. On a whim, he applies for fighter pilot training. A few tense weeks later, he and eleven other young men are notified that they have been accepted—he is overjoyed!
Some years later the first symtoms began to emerge and eventually he was diagnosed with MS (Multiple Sclerosis). This is the story about Stefan Granholm, still fighting battles, but of a totally other kind.
Most of us take the healthy functioning of our bladder for granted, but impairment of bladder function can be a deeply troubling cause of daily anxiety if you have a Neurogenic Bladder. In this post, we shall look at the symptoms and available treatments for managing the Neurogenic Bladder.
Water is the only drink for a wise man, Henry David Thoreau said. And we agree!
Water supports kidney and bladder functions, helps prevent constipation, and makes it easier to maintain your weight as water reduces cravings for other more calorie-dense drinks. Water also helps those with tetraplegia to manage low blood pressure issues.
So let’s dive into the essentials!
It´s February 1992 and on the PA system I hear ”Bob en piste”. I am in Albertville, France, during the olympics and for some obscure reason I ended up watching the 4-man bob-sleigh. We shall not go into detail about that story for the sake of you readers...
However, something became very clear to me when I saw these olympic athletes competing. The first thing they measured was the starting time, basically how fast they were able to run to a certain point and then get into the Bob. The top teams always had the best start times. Those who were way behind these first few seconds had no chance to win any medals. The race was not won during the first few seconds but a good start was important to stand a chance during the rest of the race.
This time we will do some trend spotting, and what could be better than discussing the future with someone who made history, revolutionizing catheterization with the hydrophilic catheter – Jan Utas.
From your first minute on this earth your poo is of greatest interest, first to your parents (Is the child constipated? What color is the poo?). Then, after a gentle transition, you are supposed to be the poo manager yourself. And it is important, because when the bowel works, life tends to work.
Today we will talk about neurogenic bowel dysfunction – when the bowel doesn’t work – and also about connected treatments.