Pain part 1: When the pain doesn't leave

Posted by Kent Revedal, January 19 2017

”Pain is just weakness leaving your body”. Ever heard that statement? It’s a compelling slogan that the US Marine Corps use in their recruitment ads. It may be an effective recruiting tool, but is it true?   

Read More

Topics: Spinal cord injury, MS, Spina Bifida

Science Alert — 2016 in review

Posted by Maria Åberg Håkansson, January 12 2017

Does your job or role demand you to keep track of new research? Are you eager to take part in the latest scientific findings but find yourself to constantly run out of time? The Science Alert may give you some help on the way!

 

Read More

Topics: Science Alert

Kissinger's Story Part 2: a positive outlook after a SCI

Posted by Kissinger Deng, December 23 2016

Facing new challenges and uncertainties after sustaining a spinal chord injury have emboldened Kissinger's outlook; in this post, the paralympian describes how his experiences have shaped his attitude.

Read More

Topics: sci

Kissinger's Story Part One

Posted by Kissinger Deng, December 15 2016

In the first of a two part series, Kissinger Deng, a Paralympian living in Norway, recalls the events that led to his injury, and his difficult journey towards recovery. It's been far from easy, but there have been many  triumphs along the way and Kissinger is happy to share his whole story with you.

Read More

Topics: Spinal cord injury, users, Lifestyle, sports

Travel tips: spread your wings and fly with me!

Posted by Kissinger Deng, December 8 2016

Having suffered a SCI at age 16, Kissinger Deng knows the pitfalls involved in flying as a wheel chair user. A Paralympian, he flies often as the goal keeper for the Oslo Sledge Hockey team. Here he shares his tips for a hassle-free travel experience.

Read More

Topics: travel

Taking charge of your life, Part 2

Posted by Anna Westberg, December 2 2016

There are always positives to be found among the downsides. If the disease or diagnosis, and the various associated matters weigh heavily, it helps to look for all the positive things in life that weigh against this. To achieve that balance, a caregiver needs to be prepared to talk, ask questions and not serve answers like an automaton.

Read More

Topics: Coping strategies

Taking charge of your life, Part 1

Posted by Anna Westberg, December 1 2016

What do you do when faced with the hard facts? How do you go on after a life-changing diagnosis that you will live with 24 hours a day, maybe for the rest of your life? There may be no cure, but there could be relief – and ways to gain new perspectives.

Read More

Topics: Coping strategies

What's the difference between Enlarged Prostate (BPH) and Prostate Cancer?

Posted by Helene Klasson, November 18 2016

Many people think that an enlarged prostate (BPH) and prostate cancer are associated, but the simple answer is: No, they are not.

Professor Ralph Peeker explains the concepts.

Read More

Topics: BPH

Love, intimacy and regaining confidence post illness or injury

Posted by Kent Revedal, November 10 2016

When you have a life changing experience such as an accident, or you get a diagnosis, a lot of things can change in your life. It is during times like these that we realize that no man is an island. We surely need people in our life. Through my work with CercaDeTi Rehab, my colleague and I have identified three key areas to work on to avoid isolation, which I shall share with you in this post.

 

Read More

Topics: intimacy

Sex after injury or illness – part 2

Posted by Anna Westberg, November 3 2016

"Don't make sex so difficult". Dorthe Forsell is a sex therapist at the Neurology Department at Sahlgrenska University Hospital. In the second and final part of the interview, she wishes that more people could take a more relaxed and playful approach to sex.

Read More

Topics: CIC, TAI, MS, sci, Sexuality

Sex after injury or illness – part 1

Posted by Anna Westberg, October 27 2016

After an injury or illness that reduces physical capabilities, your sex life may face new challenges. It takes time to adapt to your changed body. But the sex drive is not lost – it's there, like for all other people.

Read More

Topics: CIC, TAI, MS, sci, Sexuality

Kent Revedal: How I found the solution to my SCI related bowel problems

Posted by Paul Wilkinson, October 20 2016

One consequence of a broken spinal cord is loss of bladder and bowel control. 

Kent Revedal suffered a spinal cord injury in a motorcycle accident and he desperately searched for a bowel regime to avoid public 'accidents'. He found one! This is Kent's own story, in three films, about how that happened. 

Read More

Topics: TAI, sci

6 tips and tricks to succeed with Transanal Irrigation (TAI)

Posted by Kent Revedal, October 13 2016

”As easy as one, two, three...” Everywhere we hear or see commercials about technical things. We hear that it's so easy, almost intuitive. What many of us have learned – sometimes the hard way is that if it sounds too good to be true, it is too good to be true... Some things need to take time and practise.

 

Read More

Topics: TAI, Transanal irrigation, sci

2 experts: How to increase compliance in transanal irrigation (TAI)

Posted by Helene Klasson, October 6 2016

One of the biggest issues with transanal irrigation (TAI) is that many users quit too early – before the therapy had a chance to be effective.

We asked three experts to share their views on this topic – this is the summary of their talks.

Read More

Topics: TAI

What is Transanal Irrigation?

Posted by Helene Klasson, September 30 2016

It can be difficult to find a regular toilet routine if you suffer from chronic constipation or fecal incontinence. Some people are constantly afraid of public accidents or literary spending hours in the bathroom. 

Mikey was one of them until he found the solution to his bowel problems – transanal irrigation (TAI). This blog post will give you an insight!

 

Read More

Topics: Bowel therapy, bowel management, TAI

Join the 2016 Distinguished Gentlemans Ride

Posted by Helene Klasson, September 23 2016

This weekend, join men and women across the globe in the 2016 Distinguished Gentleman’s Ride to find a cure for Prostate Cancer and to help Men’s Mental Health.

Read More

Topics: BPH, Enlarged Prostate

User perspective of TAI: Lack of knowledge among healthcare professionals is causing needless suffering

Posted by Helene Klasson, September 22 2016

Our user panel TellUs gives us a lot of useful information. For example that 82% of the people with Spinal Cord Injury have problems with their bowel. But there is still a stigma attached. Only 29% of the panel members were asked about their bowel by a healthcare professional, while 68% wanted to be asked... Sometimes the knowledge is poor, and sometimes it's just hard to get over the embarrassment.

Our guest blogger Kent Revedal has a clear stand on this matter - this is his direct plea to the healthcare professionals out there!

Read More

Topics: Spinal cord injury, TAI, Transanal irrigation, sci

Improving SCI care in Nepal

Posted by Helene Klasson, September 15 2016

Suffering a Spinal Cord Injury is a devastating and life-altering event for anyone, but in developing countries with limited healthcare systems, it’s even more fatal. We talked to Mandira Baniya, Nursing Supervisor at the Spinal Injury Rehabilitation Center in Nepal.

Mandira has performed a unique study on intermittent catheterization in Nepal. Among other remarkable findings, her study states that 96% of the participants reuse their disposable catheters, and that 73% don’t have accessible toilets.

Find out more about Mandira Baniya and her study in this blog post!

Read More

Topics: CIC, sci

How I became a Paralympic Archer

Posted by Helene Klasson, September 8 2016

Mikey became spinal cord injured during an assault course in the army. Today he's using a bow instead of a firearm, and made it to Paralympics in Rio!

Read More

Topics: Spinal cord injury, sports

Being a Paralympic nurse

Posted by Helene Klasson, September 1 2016

Not only the athletes are making it to the Paralympics in Rio this year – there are also a whole team of nurses and other medical staff on site. We got hold of Bev Everton, a nurse with the British Paralympic team. Bev always keep a survival kit in her bag, but not the kind you think…

Read More

Topics: CIC, travel, Bowel therapy, bowel management