For Anne, visual impairment was the first sign of Multiple Sclerosis (MS). Another serious effect of her diagnosis were the severe bowel problems she experienced. In this post, Anne shares how she recovered a functioning bowel routine.
Paulene, 66, was diagnosed with Multiple Sclerosis (MS) at the age of 40, and has had bowel issues ever since. Her nurse recommended she try a new therapy, but what does an app have to do with bowel function...
For a child living with bowel dysfunction, life can be difficult, but there is an effective solution to voiding that doesn't involve chemicals, surgery or medication and reduces the risk of accidents. But how do you motivate your child using transanal irrigation?
"Severe bowel problems are a social stigma. Many people tend to stay at home, too embarrassed to go out. Finding a working bowel routine is key to quality of life for these patients", Valentina Passananti, specialist in Clinical Medicine and Gastroenterology, says.Read More
"In pediatric care it's common to treat bladder and bowel together, in cross-functional teams - something adult care could learn from", says Dr Giovanni Mosiello, pediatric urologist, when we met with him at ICS in Florence.
When a child suffers from bowel problems, it often affects the whole family. Many struggle for far too long with dietary and stool changing medication, without satisfactory results. But there are other solutions!
Bowel management is not an easy subject to talk about. Many children with bowel dysfunction and their families suffer in silence, often in desperate need for help. One of the nurses who goes above and beyond to support these families is award winning Christeen Smith from Edinburgh. Watch this interview to get to know her more!Read More
Paul and his son Tim, who is now 16 years old, were early adopters of TAI, so much so that they almost invented the therapy themselves…Read More
”As easy as one, two, three...” Everywhere we hear or see commercials about technical things. We hear that it's so easy, almost intuitive. What many of us have learned – sometimes the hard way – is that if it sounds too good to be true, it is too good to be true... Some things need to take time and practise.
Our user panel TellUs gives us a lot of useful information. For example that 82% of the people with Spinal Cord Injury have problems with their bowel. But there is still a stigma attached. Only 29% of the panel members were asked about their bowel by a healthcare professional, while 68% wanted to be asked... Sometimes the knowledge is poor, and sometimes it's just hard to get over the embarrassment.
Our guest blogger Kent Revedal has a clear stand on this matter - this is his direct plea to the healthcare professionals out there!Read More
When a nurse showed me a TAI system for the first time I was sure it wasn’t for me. It involved water, tubes, catheters and a pump. I could picture how messy it would be, and disgusting. Brown water, constant maintenance, constant aggravation...
No thank you.
But one can change...
My history has been shared in earlier blog posts: Searching for a bowel therapy and Take it easy—take TAI. If you haven’t read them, feel free to read them first to understand my original circumstances.
And you should definitely continue to read this one about me becoming a TAI advocate!Read More
S**t happens! It’s an expression many of us use when life presents unexpected and unwanted situations.
But for some of us ”s**t happens” literally is a dream come true... If you can control it.
In my previous blog post, Searching for a bowel therapy, I shared my story of how desperately I needed a bowel regime that would make me feel safe.
My Spinal Cord Injury had caused loss of control of my bowel and that had a huge impact on my social and business life.
But now I have found my bowel therapy... Continue to read and I will tell you all about it!Read More