What freedom and dignity means when living with Spina Bifida
October 25 2020
To be born with Spina Bifida is to be used to the obstacles the condition presents – nevertheless, you do get tired of them from time to time. We met Ida Rönnblad – sociable, positive and a passionate bird-watcher. Over a cup of coffee we discussed what freedom and dignity means to her.
Read MoreTopics: Clean Intermittent Catheterization (CIC), Spina Bifida, Bladder dysfunction, dignity
Intermittent Catheterization with a three-year-old
October 21 2020
Most riders guide their horse with their legs, but Evie has no sensation from the knees down, as she was born with a form of Spina Bifida. It affects her balance, but that doesn’t stop her from riding Daisy. It also impairs Evie’s bladder and bowel function, so she uses urinary catheters to empty her bladder.
Read MoreTopics: Neurogenic bladder, Bladder dysfunction, Intermittent Catheterization
Multiple Sclerosis: It is okay to grieve
July 22 2020
Krista was diagnosed with Multiple Sclerosis in 1996. Since then, she has experienced developments both good and bad. Here she shares her insights and advice for those suffering from multiple sclerosis.
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Topics: Neurogenic bladder, Multiple Sclerosis (MS), Bladder dysfunction, quality of life
Worse bladder symptoms often mean worse bowel symptoms. Yet they are rarely addressed together, despite the evidence for better clinical outcomes and significant improvements in quality of life.
Lee, 30, living with MS
Read MoreTopics: Bladder and bowel interaction, Multiple Sclerosis (MS), Bowel dysfunction, Bladder dysfunction, bowel disorder
Proud to catheterize
April 15 2020
After being told in her 30s that she would need to catheterize for the rest of her life, Serena Green felt humiliated. Now she is proud to catheterize but her journey to acceptance in the years following involved friends, family and healthcare professionals.
Read MoreTopics: Women's health, Bladder dysfunction, Intermittent Catheterization