With my bowel management routine, I can manage anything
April 20 2022
For me, bowel management has always been part of the game, says 22-year-old Swiss handcyle road race champion, Fabian Recher. Born with Spina Bifida, a malformation of the spine, he has used a wheelchair from an early age and he loves to swap it for a mountain bike, cross-country skis, or his favourite piece of equipment, the handcycle.Read More
Topics: Bowel management, Transanal irrigation (TAI), Spina Bifida, Neurogenic bowel, quality of life, parasports
What freedom and dignity means when living with Spina Bifida
October 25 2020
To be born with Spina Bifida is to be used to the obstacles the condition presents – nevertheless, you do get tired of them from time to time. We met Ida Rönnblad – sociable, positive and a passionate bird-watcher. Over a cup of coffee we discussed what freedom and dignity means to her.Read More
Topics: Clean Intermittent Catheterization (CIC), Spina Bifida, Bladder dysfunction, dignity
To children with Spina Bifida: You CAN do it!
October 25 2020
Today is World Spina Bifida Day and to raise awareness, we asked Evie Toombes, Para Athlete and invisible illness ambassador, what she would tell her younger self, having been born with Spina Bifida, if she had the chance. Read her interesting and passionate story.Read More
Topics: Neurogenic bladder, Spina Bifida, Intermittent Catheterization
Evie Toombes: "Find a way - not an excuse!"
March 7 2019
Para rider, blogger and campaigner, Evie spreads awareness of hidden disabilities as founder of The Evie Toombes Foundation, inspiring others to live their life to the fullest in the face of adversity.Read More
Topics: Clean Intermittent Catheterization (CIC), Spina Bifida, Bladder management