Community leader Daniel Jenkins and the benefits of an all-in-one kit

Posted by Chris Bridgman, November 16 2017

Daniel Jenkins needs to be out in his town every day. As a pastor, he supports his community and often makes home visits. Paralysed after an operation 12 years ago, Daniel lost sensation in his lower abdomen, including bladder control. In this post, he explains how an all-in-one catheter kit gives him peace of mind and allows him to fulfil his obligations.

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Topics: Spinal cord injury, CIC, travelling with catheters, Spina Bifida, sci, All-in-one kit

Hassan's Remarkable Recovery

Posted by Helene Klasson, September 5 2017

The doctors attending to Hassan had not heard from him in a long time; with his extensive injuries and constant battling of infection, they feared the worse. But the most remarkable recovery had occurred. This is how it happened…

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Topics: Spinal cord injury, UTI, Intermittent Catheterization

Science Alert: Spinal Cord Injury (SCI) - Beyond the injury

Posted by Maria Åberg Håkansson, August 15 2017

Initial management after spinal cord injury is crucial in saving lives. It is often characterized by early transfer to specialized centers and early initiation of treatments.

Long-term management is, however, almost as important. New research focuses on both of these and stresses the importance of early prevention of chronic complications, as these are common health problems affecting the quality of live for people living with a spinal cord injury

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Topics: Science Alert, Spinal cord injury, sci

Science Alert: Living with spinal cord injury – long-term perspective

Posted by Maria Åberg Håkansson, May 30 2017

Intermittent catheterization seems to be key to improving quality of life when living with a spinal cord injury. New research has confirmed that the therapy can increase the number of quality-adjusted life years (QALYs) by 93% and at the same time reduce urinary incontinence by 38%.

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Topics: Science Alert, Spinal cord injury, catheterization, Intermittent Catheterization

Passion for dancing: Meet Joel Brown

Posted by Helene Klasson, April 13 2017

Joel’s older brother was driving the car, packed with siblings, returning from a sunny day at the lake when the accident happened. At the age of 9 Joel suffered a spinal cord injury, but it didn’t stop him from making his way to the dance floor.

Photo by Hugo Glendinning 

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Topics: Spinal cord injury, Coping strategies

Disposable catheters have given me the feeling of being normal again

Posted by Kissinger Deng, April 7 2017

Born in Southern Sudan, injured in Egypt and living in Norway, I have experienced many kinds of medical care. This is my journey to a working bladder routine after suffering a spinal cord injury.

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Topics: Catheter, Spinal cord injury, CIC, Bladder management

Exchanging the wheelchair for a Porsche

Posted by Helene Klasson, March 15 2017

There are 10 000 people with a racing license in the UK. 200 of them are women, and one of them has a spinal cord injury. Her name is Nathalie McGloin and today she is at the ACCT symposium in Sweden to share her inspiring story.  For you who will miss it – here is a teaser!

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Topics: Spinal cord injury, sports, ACCT2017

Science Alert: Spinal Cord Injury – beyond the injury

Posted by Sofi Sigvardsson, February 21 2017

Health problems are common after a spinal cord injury and they have been found to have a great impact on day to day life. A recent publication describes the extent of this impact and also lists the most frequent problems, such as bladder and bowel regulation.

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Topics: Science Alert, Spinal cord injury, sci

Pain part 2: Pain management

Posted by Kent Revedal, January 30 2017

I saw a Facebook post a few weeks ago, a picture of a woman in some kind of yoga position and the text announced ”Your attitude is your best pain management tool”.

My first reaction was that someone obviously knew nothing about pain. But the more I thought about it, the more it grew on me. As simple as it sounds, it holds a lot of truth... 

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Topics: Spinal cord injury, MS, Spina Bifida

Science Alert: Living with a Spinal Cord Injury

Posted by Maria Åberg Håkansson, January 26 2017

There is no doubt that physical disability is of central concern for a person with spinal cord injury. Recent research however highlights that less evident problems are more common, such as bowel and bladder issues. 

This might be the reason why many treatment forms and research studies are addressing these problems. 

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Topics: Science Alert, Spinal cord injury

Pain part 1: When the pain doesn't leave

Posted by Kent Revedal, January 19 2017

”Pain is just weakness leaving your body”. Ever heard that statement? It’s a compelling slogan that the US Marine Corps use in their recruitment ads. It may be an effective recruiting tool, but is it true?   

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Topics: Spinal cord injury, MS, Spina Bifida

Kissinger's Story Part One

Posted by Kissinger Deng, December 15 2016

In the first of a two part series, Kissinger Deng, a Paralympian living in Norway, recalls the events that led to his injury, and his difficult journey towards recovery. It's been far from easy, but there have been many  triumphs along the way and Kissinger is happy to share his whole story with you.

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Topics: Spinal cord injury, users, Lifestyle, sports, Kissinger Deng

User perspective of TAI: Lack of knowledge among healthcare professionals is causing needless suffering

Posted by Helene Klasson, September 22 2016

Our user panel TellUs gives us a lot of useful information. For example that 82% of the people with Spinal Cord Injury have problems with their bowel. But there is still a stigma attached. Only 29% of the panel members were asked about their bowel by a healthcare professional, while 68% wanted to be asked... Sometimes the knowledge is poor, and sometimes it's just hard to get over the embarrassment.

Our guest blogger Kent Revedal has a clear stand on this matter - this is his direct plea to the healthcare professionals out there!

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Topics: Spinal cord injury, TAI, Transanal irrigation, sci

How I became a Paralympic Archer

Posted by Helene Klasson, September 8 2016

Mikey became spinal cord injured during an assault course in the army. Today he's using a bow instead of a firearm, and made it to Paralympics in Rio!

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Topics: Spinal cord injury, sports

Family life after a Spinal Cord Injury

Posted by Helene Klasson, August 24 2016

He was on his way to Spain to start a career as a professional basketball player when he met Sarah. Normally he was quite shy, but there was something special about Sarah that made him leave his comfort zone and not only ask her out on a date, but to come to Spain with him.

And here they are a few years later, living a family life back in Sweden. One thing’s for sure—there’s another level of challenges with small kids, when dad is in a wheelchair.

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Topics: Spinal cord injury, Family life

Sports was my rescue

Posted by Helene Klasson, August 18 2016

As a kid he was a promising soccer player. Growing up in the country, the soccer field was his whole world. But after an illness his life took a sudden turn. Today he is playing basketball and rugby – in a chair.

Read about Mikael who took his life back with help from his biggest passion – sports.

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Topics: Spinal cord injury, sports

To be a kid with spinal cord injury

Posted by Helene Klasson, June 23 2016

She was injured in a car accident at the age of five – today she is 19 and a promising handball player, living her life to the fullest. But it wasn’t always easy to be a child with a spinal cord injury.

This is Julia Johansson’s inspiring story.

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Topics: Spinal cord injury, CIC

A kidney failure almost ended his life — but not his love for it

Posted by Helene Klasson, June 9 2016

Taneli Tenhunen has had a spinal cord injury from birth, and reveals my own prejudice towards those who use a wheelchair. Taneli can’t fly either, but close enough.

He made it to the Paralympics in Beijing and now he is planning his comeback in the tennis court. Next stop Tokyo, 2020!

You can’t fly, right? But probably you don’t think about that much? I can’t walk and I don’t think about that much…
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Topics: Spinal cord injury, Lifestyle

When it doesn't show – about invisible disabilities

Posted by Sabina Dahlstrom, March 31 2016

Millions of people around the world have some kind of disability. In many cases it is impossible to tell, just by looking at someone.
These invisible impairments are limiting in one way or another, even though it is not obvious to others.
So let’s focus beyond the visible!

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Topics: Spinal cord injury, CIC

Cure vs care for people with spinal cord injury

Posted by Kent Revedal, March 3 2016

Stem cells, Exosceleton and Cyborgs.
Things that make people raise their eyebrows. Things that make investors open their pockets. All headline news. 

On the other hand, a new design for catheters, wheelchairs or cushions to sit on. Not as exciting probably. Will definitely not make the headlines... 

But is it possible to choose between cure and care? 

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Topics: Spinal cord injury