Alice Tillman is really passionate about spreading knowledge of TAI – the thought of other children having to endure painful procedures because of bowel disorders, like she did, makes her frustrated when there is an alternative available. She hopes that all children who need it will be able to use it and get the fun back in their life.
Topics: Bowel management, Children and TAI, Bowel dysfunction
To be born with Spina Bifida is to be used to the obstacles the condition presents – nevertheless, you do get tired of them from time to time. We met Ida Rönnblad – sociable, positive and a passionate bird-watcher. Over a cup of coffee we discussed what freedom and dignity means to her.
Topics: Clean Intermittent Catheterization (CIC), Spina Bifida, Bladder dysfunction, dignity
Today is World Spina Bifida Day and to raise awareness, we asked Evie Toombes, Para Athlete and invisible illness ambassador, what she would tell her younger self, having been born with Spina Bifida, if she had the chance. Read her interesting and passionate story.
Topics: Neurogenic bladder, Spina Bifida, Intermittent Catheterization
Most riders guide their horse with their legs, but Evie has no sensation from the knees down, as she was born with a form of Spina Bifida. It affects her balance, but that doesn’t stop her from riding Daisy. It also impairs Evie’s bladder and bowel function, so she uses urinary catheters to empty her bladder.
Topics: Neurogenic bladder, Bladder dysfunction, Intermittent Catheterization
Having organized their whole lives around her enema schedule, Alice and her family discovered the benefits of Transanal Irrigation – TAI. Would Alice finally be able to go to the toilet without pain?
Topics: Bowel management, Children and TAI, bowel disorder
